Phew, Thursday night was a nerve wracking night. You see I’m on the school quiz team and we had a quiz against two other schools. The good news is we won… but not easily like in the last round. The final score was 94-92-76.
It was nerve wracking because I had to get my question right for us to win. Fortunately my question was “Where are Ireland in the Rugby world rankings” and thanks to my dad and I being complete sport nuts I knew that the answer was fourth. But then the last team had to get their question wrong for us to win… and they did!!! So now we are down to the last 16 in the country!!! We will have another quiz after the Easter holidays! Oh did I not mention that? I have two whole lovely beautiful weeks off school to do whatever I please… which will probably study… and I’m also going to a college open day but anyway…
Due to crohn’s being a long-term illness I had to go to the hospital yesterday for an appointment with my consultant. Anyway, I checked in and I was waiting for like 45 minutes and I still hadn’t been weighed and I asked the nurse what the craic was… stupid receptionist hadn’t checked me in right… so then I had to wait around even longer.
Sadly, the prof (my consultant-everyone calls him that) is not at all happy with the last blood test I had… my iron is low, my protein is low and the inflammation levels are high! So I had to have another blood test… which thankfully took only one attempt (The last time it took three and I had a very sore hand).
So now I have to find a load of useless information for this quiz after Easter.
Later
Sal
Saturday, 31 March 2007
Tuesday, 27 March 2007
Life as a Crohny
Well today wasn’t too bad despite the fact that I’m getting a head cold which will probably turn into a full on flu by the end of the week due to the injection I take every fortnight for my crohn’s disease. I should probably explain that…Back to the very beginning…
In August 2005 I was diagnosed with crohn’s disease, it is an inflammatory bowel disease (and a right old pain). It means I suffer regularly with cramps, fever and other things I’d rather not discuss. Anyway, my doctors put me on Steroids…
All seemed to be going grand… Until the 16th September. I started getting extremely sharp pains in my stomach, and not the usual place that I get them, and excruciating pain in my back (trust me- I AM NOT LYING). I went to Accident and Emergency and they put me on Antibiotics, told me I had a kidney infection (HA- I wish!!!) and sent me home. Then 2 days later, despite the fact that I had started the course of antibiotics, I felt every bit as bad if not worse. So my parents brought me to the Care Doc (Late night Doctor) at 10pm. He seemed very concerned. He wrote a note for Accident and Emergency and told me to go up the next day if I felt worse.
But the next morning, my stomach or back wasn’t too bad but I was freezing. I decided I might try eat something.- bad idea. I got sick and then it felt like someone had broken my spine and put a knife through my stomach. I screamed and cried and sat in a ball while my mam and dad ran around the house packing an overnight bag- no doubts in their minds that the only place to bring me was the hospital.
When we got there I didn’t even have to go through Triage (annoying procedure thing) because at this stage I couldn’t even walk. They put me on a trolley and started pumping me with morphine (Yes- that’s how bad the pain was) and that couldn’t even ease the pain. Eventually after various blood tests, CT scans and X-rays. I was told I had pancreatitis and even scarier than that- I COULD HAVE DIED! And all this was caused by those stupid steroids. I had to stay in hospital for a month.
When the doctors let me out of hospital they didn’t give me any medication to replace the steroids. So for 7 months I suffered. I was 6 and half stone (skeletal looking in other words), was always cold and never in school (you can imagine how traumatic that would be for a nerd such as myself!!!) They sorted me out with an infusion that I could get every 8 weeks. And I was feeling great… I had put weight back on and I had gotten a summer job for my school holidays… but the problem was the infusion wasn’t lasting. I would feel great for 4 weeks and then I’d be left feeling icky and losing weight for the remaining four.
So then in September they finally found a medication that works. I’m still on it now… only problem is I have to inject myself every fortnight (there are probably diabetics out there rolling their eyes saying “How do you think I feel?” and I’m sorry, but it isn’t easy for anyone!) Oh wait that isn’t the only problem. It is an immune suppressant which means I catch illnesses really quickly and they become twice as bad as what everyone else has… then I have to go on anti-biotics which rip my stomach in shreds and also exacerbate my crohn’s… it’s a vicious circle.
Later
Sal
In August 2005 I was diagnosed with crohn’s disease, it is an inflammatory bowel disease (and a right old pain). It means I suffer regularly with cramps, fever and other things I’d rather not discuss. Anyway, my doctors put me on Steroids…
All seemed to be going grand… Until the 16th September. I started getting extremely sharp pains in my stomach, and not the usual place that I get them, and excruciating pain in my back (trust me- I AM NOT LYING). I went to Accident and Emergency and they put me on Antibiotics, told me I had a kidney infection (HA- I wish!!!) and sent me home. Then 2 days later, despite the fact that I had started the course of antibiotics, I felt every bit as bad if not worse. So my parents brought me to the Care Doc (Late night Doctor) at 10pm. He seemed very concerned. He wrote a note for Accident and Emergency and told me to go up the next day if I felt worse.
But the next morning, my stomach or back wasn’t too bad but I was freezing. I decided I might try eat something.- bad idea. I got sick and then it felt like someone had broken my spine and put a knife through my stomach. I screamed and cried and sat in a ball while my mam and dad ran around the house packing an overnight bag- no doubts in their minds that the only place to bring me was the hospital.
When we got there I didn’t even have to go through Triage (annoying procedure thing) because at this stage I couldn’t even walk. They put me on a trolley and started pumping me with morphine (Yes- that’s how bad the pain was) and that couldn’t even ease the pain. Eventually after various blood tests, CT scans and X-rays. I was told I had pancreatitis and even scarier than that- I COULD HAVE DIED! And all this was caused by those stupid steroids. I had to stay in hospital for a month.
When the doctors let me out of hospital they didn’t give me any medication to replace the steroids. So for 7 months I suffered. I was 6 and half stone (skeletal looking in other words), was always cold and never in school (you can imagine how traumatic that would be for a nerd such as myself!!!) They sorted me out with an infusion that I could get every 8 weeks. And I was feeling great… I had put weight back on and I had gotten a summer job for my school holidays… but the problem was the infusion wasn’t lasting. I would feel great for 4 weeks and then I’d be left feeling icky and losing weight for the remaining four.
So then in September they finally found a medication that works. I’m still on it now… only problem is I have to inject myself every fortnight (there are probably diabetics out there rolling their eyes saying “How do you think I feel?” and I’m sorry, but it isn’t easy for anyone!) Oh wait that isn’t the only problem. It is an immune suppressant which means I catch illnesses really quickly and they become twice as bad as what everyone else has… then I have to go on anti-biotics which rip my stomach in shreds and also exacerbate my crohn’s… it’s a vicious circle.
Later
Sal
Monday, 26 March 2007
Cooking Disaster
I should probably introduce myself first seen as I'm new to this whole blogging thing. I'm a nerd who actually enjoys school and you can call me Sal! I'm a fifth year student who has crohn's disease (which surprisingly has caused me to become even nerdier...). I love reading... but unlike everyone else in my school I hate Harry Potter and I hate Lord of The Rings... I'm not really into fantasy.
But anyway... on to my cooking disaster... I decided this morning (I took the say off school... stupid crohn's) that I was going to treat myself by trying out a new recipe I had found in the paper a couple of weeks ago. It looked pretty simple. It was baked egg with ham and mushroom... I know what you're thinking... how could that go wrong? Well it did. When I took it out of the oven the egg was still running. I checked the oven and I had switched it on... you would think a nerd such as myself would have read the recipe wouldn't ya? Well I didn't... you were supposed to used boiling water and I just used cold tap water... So then I got in a huff and just eat toast.
I know this is boring... but give me a while to relax into the whole blogging experience!!!
Later
Sal
But anyway... on to my cooking disaster... I decided this morning (I took the say off school... stupid crohn's) that I was going to treat myself by trying out a new recipe I had found in the paper a couple of weeks ago. It looked pretty simple. It was baked egg with ham and mushroom... I know what you're thinking... how could that go wrong? Well it did. When I took it out of the oven the egg was still running. I checked the oven and I had switched it on... you would think a nerd such as myself would have read the recipe wouldn't ya? Well I didn't... you were supposed to used boiling water and I just used cold tap water... So then I got in a huff and just eat toast.
I know this is boring... but give me a while to relax into the whole blogging experience!!!
Later
Sal
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